Clayton Feig Legacy Fund – Faces of Epilepsy

Stories of Epilepsy


Jessenia Bermudez

Jessenia Bermudez has been a client of Epilepsy Florida since 1994. Jessenia was diagnosed with Epilepsy at the age of 1.  When she was a child, her family reached out to Epilepsy Florida for help maneuvering and understanding her condition, which they knew nothing about.  Like many of our

Gaby | Faces of Epilepsy

Care for Gabriela Gabriela Huerta Villalobos is a 21-year-old who resides with her mother, Thais in Miami Dade. Gabriela’s mother is a single parent trying to do all she can to provide for herself and her daughter. She is the only source of income for their household. While mom works Gabriela has

Kim Dingler | Faces of Epilepsy

My struggles with Epilepsy began unexpectedly at the age of 14. My first grand mal seizure occurred in the early hours of what would have been the day of my 10th dance recital. It was scary and exhausting.  Soon after the diagnosis began several years of trials and many difficult days. Fin

Rosandra Rijo | Faces of Epilepsy

This is Rosandra. Rosandra was diagnosed with epilepsy at the age of 7 years old. Her neurologist from the Dominican Republic told her mom they were simply Infantile seizures and she would soon grow out of it… but she never did. At the age of 20 years old, she moved to Florida with the hopes [&hel


Robyn Inskeep | Faces of Epilepsy

Robyn is a 33 year old female who was 23 when she had her first seizure. She wasn’t diagnosed with epilepsy until she turned 24. When she was diagnosed there was a period of relief because she finally had an answer for what was going on but that was short lived. After being diagnosed and […


Maegan Haganey | Faces of Epilepsy

Maegan Haganey is 14 years old and is going into 9th grade at her local high school in her hometown of Inverness, FL. She attends public school with her mom that volunteers as her paraprofessional in her high functioning ESE classroom, using a special curriculum called Access Points. At the end of 7

Rakshanda Khan | Faces of Epilepsy

 Rakshanda Khan has been a member of Epilepsy Florida since she was in Elementary school. Her father first brought her to what was then known as The Epilepsy Foundation for assistance with Ms. Khan’s educational needs. The staff psychologist Dr. Siskind performed a psychoeducational assessmen


Kim | Faces of Epilepsy

Kimberly (Kim), currently 30 years old, has been living with epilepsy since the tender age of 11. Her mother sought the services of Epilepsy Florida for additional support in 2004 when she was 16 years old. A few years before this time, her father sadly passed away and her mother struggled financial


Joshua Sandoval | Faces of Epilepsy

When Joshua was just 3 months old, his mother noticed he had a shaking in his hands.  His parents videotaped his shaking and took it to his doctor who then immediately had Joshua sent over to the hospital. It was then that he was diagnosed with Tuberous Sclerosis Complex (TSC), a rare


Jose Lopez | Faces of Epilepsy

Jose Lopez has been part of Epilepsy Florida since 1993. He was diagnosed with epilepsy at the age of 18. Jose was referred to us while he was hospitalized after having multiple seizures. One of the major challenges he was facing before he became a client was not having any medical attention for his

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