Robyn is a 33 year old female who was 23 when she had her first seizure. She wasn’t diagnosed with epilepsy until she turned 24. When she was diagnosed there was a period of relief because she finally had an answer for what was going on but that was short lived. After being diagnosed and […
Clayton Feig Legacy Fund – Faces of Epilepsy
- 1 in 26 people will develop epilepsy at some point in their lifetime, and 150,000 new cases of epilepsy will be diagnosed in the United States each year.
- Despite the common nature of this disorder, every person faces a unique set of challenges and solutions. Most agree that having the opportunity to share their stories and give others a window into their experience can be truly uplifting.
- Currently 400,000 Floridians are living with this disorder, and through Epilepsy Florida’s 1 in 26 campaign, they can share their stories.
- Each story is different. Watch the videos below to get to know some of these amazing people.
- Share these profiles with your friends, family, co-workers and acquaintances, and join us in our efforts to spread awareness.
- Contact Betty Fernandez, Marketing Manager, at to share your story and be featured on our blog!
Maegan Haganey is 14 years old and is going into 9th grade at her local high school in her hometown of Inverness, FL. She attends public school with her mom that volunteers as her paraprofessional in her high functioning ESE classroom, using a special curriculum called Access Points. At the end of 7
Rakshanda Khan has been a member of Epilepsy Florida since she was in Elementary school. Her father first brought her to what was then known as The Epilepsy Foundation for assistance with Ms. Khan’s educational needs. The staff psychologist Dr. Siskind performed a psychoeducational assessmen
Kimberly (Kim), currently 30 years old, has been living with epilepsy since the tender age of 11. Her mother sought the services of Epilepsy Florida for additional support in 2004 when she was 16 years old. A few years before this time, her father sadly passed away and her mother struggled financial
When Joshua was just 3 months old, his mother noticed he had a shaking in his hands. His parents videotaped his shaking and took it to his doctor who then immediately had Joshua sent over to the hospital. It was then that he was diagnosed with Tuberous Sclerosis Complex (TSC), a rare
Jose Lopez has been part of Epilepsy Florida since 1993. He was diagnosed with epilepsy at the age of 18. Jose was referred to us while he was hospitalized after having multiple seizures. One of the major challenges he was facing before he became a client was not having any medical attention for his
When I was first diagnosed with epilepsy, I did not know I had epilepsy because nobody used that word. From having a tumor removed from my head to having grand mal seizures, and being told that I had a ‘seizure disorder’ but I was never told I had epilepsy which was surprising. I was afraid [&he
Stefano Leon became a client with Epilepsy Florida in 2005, he was a senior in high school, struggling to maintain his grades. Like many students with epilepsy, school can be very challenging. Stefano has been a great participant throughout his years with Epilepsy Florida. He has been part of many
When I was 12 years old I was diagnosed with epilepsy. I originally found refuge with the Dan Marino Center. I was treated using Depakote ER, which worked for the time; however, I grew immunity to it at the age of 17. I had convulsive seizures in school and had to be taken to the […]