Clayton Feig Legacy Fund – Faces of Epilepsy

  • 1 in 26 people will develop epilepsy at some point in their lifetime, and 150,000 new cases of epilepsy will be diagnosed in the United States each year.
  • Despite the common nature of this disorder, every person faces a unique set of challenges and solutions. Most agree that having the opportunity to share their stories and give others a window into their experience can be truly uplifting.
  • Currently 400,000 Floridians are living with this disorder, and through Epilepsy Florida’s 1 in 26 campaign, they can share their stories.
  • Each story is different. Watch the videos below to get to know some of these amazing people.
  • Share these profiles with your friends, family, co-workers and acquaintances, and join us in our efforts to spread awareness.
  • Contact Carson Pedraza, Marketing Manager, at moc.l1568573726fyspe1568573726lipe@1568573726azard1568573726epc1568573726 to share your story and be featured on our blog!

Stories of Epilepsy


Juina Joseph | Faces of Epilepsy

Most of us know of a single parent or two who have to face the daily challenges alone. Now add the additional challenge of having to be a single parent with epilepsy. That is the story of our friend, Juina Joseph, a single mother to a beautiful, smart, 9-year-old girl Savannah. While experiencing fi


Jamie Beauchamp | Faces of Epilepsy

Hi, my name is Jamie Beauchamp and I have had gran mal seizures since about 5 years old. Growing up with seizures has been quite a battle for me. Being bullied throughout school, and in my senior year there was talk about brain surgery, so that summer I had my first brain surgery at Miami […]


Lucia Ortiz | Faces of Epilepsy

Lucia Ortiz, an immigrant from Cuba has now been living in the US for nearly 10 years. More than half of that has been seizure free due to the assistance of consistent neurological care and excellent follow ups with wrap around services offered at Epilepsy Florida. She was referred to EFL through he


Dona | Faces of Epilepsy

My name is Dona and I was diagnosed with Epilepsy at the age of 18. From teenage hood to adulthood, I went to multiple Doctors throughout the east coast. From New Jersey to New York, Boston to Massachusetts, Montreal, Canada to Maryland, and different Doctors throughout Florida. I’ve had many diff


Addyson Johnston | Faces of Epilepsy

Story by The Johnston Family Addyson Lynn Johnston was born November 5, 2007, a whole two minutes older than her twin sister, Ansley. Addy is a 5th grade student at Sheffield Elementary and is anxiously looking forward to middle school! She started cheerleading at the age of five, although she has b


Danielle Petree | Faces of Epilepsy

On February 21st 2018, my life changed forever, I had my first seizure. I was helping a friend hold her project together, while she welded it for our metals sculpture class at the University of Florida. The next thing I remember is my friend saying, “Danielle it’s ok, your Mom is here.” Th


Faces of Epilepsy | Vinny Solomon

If I can describe my son, Vincent Solomon in one word it would be #mykidhero!  I know every mom and dad feels that way about their child with epilepsy and they should because they teach us the true meaning of courage, perseverance and determination.  Vinny is diagnosed with frontal lobe pa


Francesco | Faces of Epilepsy

By Giulia Covella Appreciate the little moments in life. That’s what my three-year-old son has taught me. Francesco was born, full-term and completely healthy, on December 7, 2016. He came into a world that loved and cherished him; a support system of three beautiful step siblings, two loving pare


Kathy Walden | Faces of Epilepsy

When Kathy first reached out to EF, she had just had 2 back-to-back seizures which caused her to spend a week in the hospital. She lost a lot of her short-term memory. She ultimately ended up losing her job, due to her seizures, that caused her to miss many days of work. A nurse from […]


Cheyeanne Crosby | Faces of Epilepsy

My Name is Cheyeanne Crosby and I am a 21-year-old with Epilepsy, learning disabilities, and Emotional conditions, and other medical conditions. For the first few months of my life I was a typical baby and one year old. I reached every milestone, but that was shortly lived. When I was 22 month’s I

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