After that Day | Stories of Epilepsy

Epilepsy
September 21, 2020

After that Day | Stories of Epilepsy

I’m not sure where to even start. Fourteen years ago, epilepsy invaded our lives. We had no knowledge of or connection to anyone who had epilepsy. We asked everyone we knew, and soon we were on a new path— well, more like a bumpy winding, downhill slope. It took almost five years to finally get an answer to solving our epilepsy puzzle.
The long version of this story is similar to stories of so many families we meet each year as advocates and producers of Epilepsy Awareness Day at Disneyland® Resort and the Epilespy Awareness and Education Expo. I don’t need to lay out all of the details, but I am happy to say the journey to cure our daughter, Sofie, ended on a Friday, ten years ago, at University of California, Los Angeles Mattel Children’s Hospital.

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