Stories of those living with Epilepsy

I was diagnosed with epilepsy my first semester at college when I was 18 years old. Before then I thought I was invincible. I didn’t have a care in the world, especially regarding my health. I was a high school athlete with no physical or mental disabil... read more

“My name is Jay Hennessy, I was diagnosed with Post Traumatic Epilepsy (PTE) from a Traumatic Brain Injury (TBI) in 2010, which marked the beginning of a significant journey in my life as I stand before you today. Today, I am both humbled and honore... read more

Molly McCann was thirteen-years-old when she was diagnosed with epilepsy. She recently shared her story, which is relatable to so many young people affected by the disorder, with the Epilepsy Foundation of Florida.   Molly grew up in Tallahassee, FL ... read more

Richie Terrell is an amazing example of how EFOF works with legislators to help our members and veterans. EFOF has helped Richie along his journey to make sure that he has what he needs to represent his epilepsy as clearly and medically correct as possibl... read more

You never forget the first time. My wife and I stood helplessly as a debilitating seizure took over our young daughter’s defenseless body. In that moment, our greatest fears as parents unfolding before our eyes. In just under a year, we watched our ... read more

There’s no way to adequately describe how terrifying and disturbing it is to witness your child having a seizure. How helpless you feel. How angry and distraught. How desperately you want answers. How much you worry about when the next one will come, ag... read more

With the matinee-idol good looks of a young Clooney, Carlos Gimenez sits listening to his guest in the subtly appointed conference room of the public advocacy firm where he spends most days he’s not kiting around the country and the world for his client... read more

Life was always a struggle. At age seven, I was outside playing with my friends when suddenly I had a grandmal seizure. After I was rushed to the hospital, the doctors could not control my epileptic seizures and weren’t sure if I was going to surviv... read more