Clay man with epilepsy to get award for advocacy, public education about the disease

Epilepsy
May 8, 2017

Clay man with epilepsy to get award for advocacy, public education about the disease

Jacksonville.com, May 5, 2017

Joshua Prewitt of Clay County suffered his first seizure at age 6 and has had them intermittently since. He has initiated several efforts to increase public education about epilepsy will receive an award at the Epilepsy Foundation of Florida’s Walk the Talk fundraiser on May 20 in Jacksonville. (Provided by Epilepsy Foundation of Florida)

2017 Walk the Talk for Epilepsy Jacksonville will be on May 20 at Metropolitan Park. Shown is a photo from last year’s event. The Epilepsy Foundation of Florida sponsors eight such fundraising walks across the state. (Provided by Epilepsy Foundation of Florida)

Joshua Pruitt is not sure what all the fuss is about.

All he did was have a few educational events at his school, St. Johns River Community College, and start a community walk in his Lake Asbury neighborhood to increase public awareness about epilepsy, a condition that has impacted his life since he was 6.

“This is all kind of new to me,” Pruitt said. “I didn’t think I’d get an award just for hosting a walk.”

But he will.

On May 20 he will receive the Clayton Feig Youth Award at the Walk the Talk for Epilepsy fundraiser at Jacksonville’s Metropolitan Park. The walk is one of eight sponsored by the Epilepsy Foundation of Florida to benefit the 400,000 people in the state live who with epilepsy.

Pruitt appreciates the recognition but said the important thing is educating the public about epilepsy, a chronic neurological condition marked by recurrent, unprovoked seizures. Many people are unfamiliar with the condition and have no idea how to help someone while they are having a seizure or in the aftermath, he said.

For the person affected, he said, “It’s horrible.”

A need to know more

Pruitt had his first seizure as a child after complaining of a headache. His mother, Kerrie Pruitt, gave him some children’s Tylenol and put him down for a nap. When she tried to wake him, his eyes were rolled to the side and he wouldn’t move.

“I didn’t know what was happening,” she said. “When my husband grabbed him, Joshua went stiff and I called 9-1-1.”

At the time, the family lived in Texas. He spent the night in a children’s hospital, but doctors could not determine the cause of the seizure and sent him home. A few days later, Pruitt suffered four back-to-back grand mal seizures, which are marked by a loss of consciousness and violent muscle contractions. After another trip to the hospital, he was put on epilepsy medication.

An epilepsy diagnosis is given when a person experiences two or more seizures that cannot be attributed to another cause, according to the Epilepsy Foundation.

“I still had no idea what epilepsy was or how he got it. I just didn’t know anything and felt at a loss,” Kerri Pruitt said.

When Pruitt was 10 the family moved to Florida and met with a neurologist at Wolfson Children’s Hospital in Jacksonville. He had had no recent seizures, so he was taken off the medication “because sometimes kids grow out of them,” she said. Doctors said subsequent dizzy spells were unrelated.

For the next 12 years, he had no seizures and had an MRI and checkup every six months. But the dizzy spells continued and worsened in number and strength, Kerri Pruitt said, and at age 19 he had another grand mal seizure.

“It was crazy,” she said. “You can’t help your child. … You’re waking up praying he’s still alive. I still do now.”

After visits to St. Vincent’s HealthCare and Mayo Clinic, doctors still could not determine the origin of his seizures. His doctors then suggested a responsive neurostimulator implant, which “automatically monitors brain signals and provides stimulation to abnormal electrical events when it is needed,” according to the Epilepsy Foundation.

That’s when Kerrie Pruitt started studying everything she could find on epilepsy and discovered a lifeline — the Epilepsy Foundation.

“They gave me so much information on epilepsy and other websites that could possibly help,” she said.

At that point, her son was in college. When he had seizures there, several people helped him, but he realized public awareness about epilepsy was lacking.

“There were so many people asking us questions. Realizing something needed to be done to raise awareness, Joshua had a couple of do-it-yourself events at the school,” Kerri Pruitt said. “As I would speak to people about Joshua’s situation, I found more and more people not knowing anything about epilepsy or how to help someone that may need help.”

So last year the Pruitts founded the Seizure Smart Talk 5k Run/Walk as a fun event and an opportunity to distribute information about epilepsy. The second annual event will be on Nov. 11 at Lake Asbury Junior High School.

Joshua Pruitt said he is “doing great” now. The responsive neurostimulator has been implanted and will soon be activated. Meanwhile, he works at a Lowe’s store and continues his advocacy.

“I have a chance to help other people,” he said.

Courage and character

The Epilepsy Foundation of Florida has several memorials for Clayton Feig, an 18-year-old South Florida man who died in 1993 of complications from the disease. During his lifetime, Feig “demonstrated courage and strength of character” dealing with the condition, said Karen Basha Egozi, CEO of the Epilepsy Foundation of Florida.

The Clayton Feig Legacy Fund supports several foundation programs for children with epilepsy. The annual awards are given to youth in each of the foundation’s eight Walk the Talk regions who have shown Feig’s brand of courage and character, she said.

“Joshua is the epitome of this award and we’re so grateful for his bravery in not only facing this disorder but serving as an advocate and raising awareness,” Basha Egozi said. “This is critical because of the stigma and misunderstandings that are commonly associated with epilepsy.”

Walk the Talk for Epilepsy 2017 Jacksonville

The event is Saturday, May 20, at Metropolitan Park, 1410 Gator Bowl Blvd. in Jacksonville. Registration is at 8 a.m, the walk at 9 a.m. Through May 18, fees are $25 for ages 13 and older and $15 for children ages 12 and younger; event-day, $35 for adults and $20 for children. The event will also feature family-friendly entertainment including a DJ, raffle, silent auction, face painting, and virtual gaming booth. To register, donate or get more information, go to bit.ly/2qbGtho.

Epilepsy Foundation of Florida

Established in 1971, the foundation is the principal agency for state-sponsored epilepsy programs and services, according to its website. For more information, contact the foundation’s Jacksonville office at 5209 San Jose Blvd., Suite 101, Jacksonville, FL 32207 or (904) 731-3752 or go to efof.org. The Jacksonville office serves Baker, Clay, Duval, Flagler, Nassau, St. Johns, and Volusia counties.

What to do if you see someone having a seizure

• Stay with the person until the seizure is over.

• Note the duration of the seizure.

• Stay calm.

• Prevent injury by moving nearby objects out of the way, particularly sharp objects.

• Make the person as comfortable as possible in a safe place. Support the person’s head to prevent it from hitting the floor.

• Keep onlookers away.

• Do not forcibly hold the person down.

• Do not put anything in the person’s mouth.

• Make sure their breathing is okay.

• If a person appears to be choking, turn them on their side and call for help.

• Be sensitive and supportive, reassure the person that they are safe.

• Once they are alert and able to communicate, tell them what happened in very simple terms. Offer to stay until they are ready to go back to normal activity or call someone to stay with them.

For more information, go to epilepsy.com.

Source: Epilepsy Foundation

http://jacksonville.com/news/metro/health-and-fitness/2017-05-05/clay-man-epilepsy-get-award-advocacy-public-education-about