Digital Resources

SUDEP Fact Sheet

Seizure First Aid: Spanish

Seizure First Aid: English

Report

Epilepsy Help | Bilingual

Report

Health Literacy

Health Literacy: Spanish

Report

Healthcare Transition

Report

Seizure Action Plan

Report

Epilepsy 101

Report

Epilepsy 101 (Español)

Report

STEPS (Español)

Report

Living With LGS, Dravet, TSC

This page is for all audiences. You can find information and resources for specific audiences by clicking on one of the links below:

Learn More about Epilepsy

Other Epilepsy Websites

Disability Resources

For Employers

Related Government Health Resources

Transition of Care Resources

Transition of Care Toolkit

Guía Para Transición de Cuidado

Transition Age Youth Links 

Downloadable Apps (Medications Control)

My Medical: http://www.mymedicalapp.com

Mobile App to Empower Young Adults with Special Healthcare Needs (DE UCEDD)

Social Security Benefits (English/Spanish/Creole)

Legal Assistance Resources

Guardianship and Other Decision-Making Alternatives (English/Spanish/Creole)

Florida Legal Services

The Florida Bar

Youth Leadership, Self-Advocacy, and Volunteering Opportunities Supporting Resources

National Youth Leadership Network

Self Advocacy: Find the Captain in You! (video from the Pacer Center)

Advocating for Yourself in School (English) (Spanish) (Haitian Creole) Tips for Middle and High School Students

Adult Model of Care/Transfer to Adult Providers

Finding and Using Adult Health Care

Planning to Move from Pediatric to Adult Care? Here’s How They Can Differ 

System Differences Between Pediatric and Adult Health Care

National Center for Cultural Competence

The Transition to Adult Health Care For Youth with Special Health Care Needs

Education and Transition

National Secondary Transition Technical Assistance Center (NSTTAC)

Employment and Transition

Institute for Educational Leadership

National Collaborative on Workforce and Disability for Youth

Federal and State Transition Resources

Federal Transition Initiatives

State Transition Initiatives

Association of Maternal & Child Health Programs (AMCHP)

Foster Care and Transition

Foster Care Transition Toolkit

Casey Family Programs

FosterClub

Guardianship and Decision-Making

Turning 18: What it Means for Your Health

Cumplir 18 años: Qué significa para tu salud

Got Transition Webinar: Understanding Guardianship and the Alternatives for Decision Making Support

Guardianship and Alternatives for Decision-Making Support

National Resource Center for Supported Decision Making

Health Insurance

Catalyst Center

HealthCare.gov Young Adult FAQs

Health Insurance Basics

Health Insurance Help Guide for College Students

National Disability Navigator Resource Collaborative

Independent Living and Transition

Independent Living Research Utilization Program (ILRU)

Institute for Community Inclusion (ICI)

National Center on Health, Physical Activity and Disability

Mental Health and Transition

Research and Training Centers

Transition Mental Health Service Provider Core Competencies (Portland State)

Transition Service Provider Competency Scale (Portland State)

Promoting Positive Pathways to Adulthood: Pathways Transition Training Toolkit (Portland State)

Transitions to Adulthood Center for Research (University of Massachusetts)

Policy Recommendations

2018 AAP/AAFP/ACP Clinical Report on Transition

2011 AAP/AAFP/ACP Clinical Report of Transition

2002 AAP/AAFP/ACP Statement

“Standards for Systems of Care for Children and Youth with Special Health Care Needs”

Relationships, Sexuality, and Pregnancy Prevention

You’ve Got a Friend: Supporting Family Connections, Friends, Love, and the Pursuit of Happiness

ReachOut

Feature Issue on Sexuality and People with Intellectual, Developmental and Other Disabilities

Sexuality Education for Children and Adolescents with Developmental Disabilities

National Campaign to Prevent Teen and Unplanned Pregnancy

Ask Alice!

Self-Care

5 Steps to Prepare for Health Care Transition

You’re Not a Kid Any More Ages 12-14 (Envisioning a Future)

Now That You’re in High School Ages 15-17 (Age of Responsibility)

When You’re 18, You’re in Charge of Your Health Ages 18+ (Age of Transition)

Sexuality Across the Lifespan

The Medical ID Feature on iPhone Health App

A guide describing how to set up your Medical ID app successfully on both Apple and Android phones.

La caracteristica Medical ID en la aplicación Salud de Apple

A guide describing how to set up your Medical ID app successfully on both Apple and Android phones (in Spanish)

The Medical ID app for Android phones

Instalación de la característica Medical ID en teléfonos Android

Questions to Ask Your Doctor about Transitioning to Adult Health Care

Preguntas para realizer a tu medico sobre la transición hacia la atención médica adulta

Becoming an Adult: Taking Responsibility for Your Medical Care

Moving into Adult Health Care: A Guide for Parents

How to Advocate for Your Health and Health Care

Communicating with Doctors and Other Health Care Providers

Talking with your Doctor

Keeping in Contact with your Health Professional

My “Must Have” Papers

NY Transitions: Skills for Moving from Pediatric to Adult Care

OnTrac Toolbox

Special Education

Health Care Transition Readiness Assessment for Students with an IEP

Evaluación de la preparación para la transición de la atención médica para estudiantes con un IEP

IEP Sample Goals

SSI Benefits and Transition

Social Security Administration (SSA)

Supplemental Security Income: What Happens to My SSI When I Turn 18?

Youth and Family Organizations

A Family Toolkit – Pediatric to Adult Health Care Transition

Health Care Transition Timeline for Youth and Young Adults

Health Care Transition Timeline for Parents and Caregivers

Got Transition’s National Family Transition Advisory Group

Family Voices

Military Parent Technical Assistance Center

National Federation of Families for Children’s Mental Health

The Native American Parent Technical Assistance Center

Pacer Center

Parent Center Hub (National Center for Parent Information and Resources)

Physician Parent Caregivers

TASH

Youth Action Council on Transition (YouthACT)

Youth Move National

Young Invincibles (YI)

Youth and Family Transition Stories, Webinars, and Videos

Parent Guide to New National Transition Report 

Young Adult Health Care Transition Social Media Toolkit

The Americans with Disabilities Act and the Health Care System: Experiences of Young Adults

Epilepsy & Seizure First Aid

School Personnel

Child care personnel

Senior 1 pager

Seizure recognition and first aid

Law enforcement

School Nurse

School Bus Drivers

Epilepsy in the workplace

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