Secure Greater Funding for a Better Treatments and Programs as well as a Cure
- Advocate to the Florida Legislature and the Governor the importance of epilepsy funding and the need for funding increases for Floridians with epilepsy to offset the diminishing funding from the Seatbelt Trust Fund.
- Identify a new source of revenue from the State of Florida budget to replace the shrinking Seat Belt Trust Fund.
- Together with the national Epilepsy Alliance America our top priority programs for federal funding increases are: -Epilepsy research at the National Institutes of Health -Epilepsy Programs at the Centers for Disease Control and Prevention (CDC) -Research in the Food and Drug Administration (FDA) and other agencies that include studies on the safety and efficacy of antiepilepsy drugs (AEDs), including bioequivalence research and medical cannabis.
Improve Access to Medical Care, Medications and Treatment
- Ensure the needs of people with epilepsy are met in implementing insurance reforms under the Affordable Care Act.
- Advocate for reasonable access to affordable and quality epilepsy care and treatments in public and private health insurance.
- Support protections that prevent discrimination based on health status in all insurance products, including any provisions that limit access or coverage for pre-existing conditions like epilepsy.
- Doctor prescribed medications is available and affordable to those with epilepsy.
- Support and advocate for research and legislation for the safe implementation and access of medical marijuana for patients’ with epilepsy.
Stop Stigma and Discrimination Against People with Epilepsy
- Advocate for epilepsy-specific legislation aimed at public awareness about epilepsy and seizures within the school system.
- Begin to incorporate epilepsy as a recognized disability by the State of Florida.
- Prohibit the use of restraints and seclusion for children with epilepsy in the school setting.
- Promote employment opportunities for people with epilepsy.
- Support full implementation of the ADA and other civil rights laws that protect the rights of people with epilepsy.
Capitol Day & Purple = Red + Blue ReceptionThe Tallahassee-based Day at the Capitol event allows for executive staff, board members, donors and key stakeholders from around the state to come together during the Legislative Session to meet with legislators, review policy and host the organization’s “Red + Blue = Purple” Reception. The evening reception will focus on recognizing those state leaders who have been supportive of Epilepsy Florida and of epilepsy sufferers as a whole across Florida.
Teens Speak Up!
Meet Kayleigh Gallo - Florida's 2017 Teen Speak Up Representative