EFL serves as the lead advocate for the rights and needs of people with epilepsy and seizures at the local, county and state levels. Advocating for effective public policies and community support is critical to EFL’s ability to provide educational assistance to those who need it most.

2017-2018 Legislative Priorities

Secure Greater Funding for a Better Treatments and Programs as well as a Cure

  • Advocate to the Florida Legislature and the Governor the importance of epilepsy funding and the need for funding increases for Floridians with epilepsy.
  • EF will advocate to Congress and the White House to support a strong fiscal environment that provides a safety net of programs for people with epilepsy and related conditions.
Improve Access to Medical Care, Medications and Treatment
  • Advocate for reasonable access to affordable and quality epilepsy care and treatments in public and private health insurance.
  • Doctor prescribed medications is available and affordable to those with epilepsy.
  • Support protections that ensure people with epilepsy can rely on the commercial insurance and pharmacy coverage benefits that they are marketed and sold for that health plan year.
  • Support and advocate for research and legislation for the implementation and better access of doctor recommended medical marijuana for patients’ with epilepsy.
Stop Stigma and Discrimination Against People with Epilepsy
  • Advocate for epilepsy-specific legislation aimed at public awareness about epilepsy and seizures.
  • Promote employment opportunities for people with epilepsy.
  • Support full implementation of the ADA and other civil rights laws that protect the rights of people with epilepsy.

Annual Advocacy Programs

Capitol Day & Purple = Red + Blue Reception

The Tallahassee-based Day at the Capitol event allows for executive staff, board members, donors and key stakeholders from around the state to come together during the Legislative Session to meet with legislators, review policy and host the organization’s “Red + Blue = Purple” Reception. The evening reception will focus on recognizing those state leaders who have been supportive of Epilepsy Florida and of epilepsy sufferers as a whole across Florida.

2019 Champion of the Heart Awardees: 
Governor Ron DeSantis and First Lady Casey DeSantis
Commissioner of Agriculture and Consumer Services Nicole Fried
Senator Aaron Bean
Representative Cord Byrd
Representative MaryLynn Magar


Teens Speak Up!

 Meet Kayleigh Gallo - Florida's 2017 Teen Speak Up Representative 

20160419_102515_1461077455774 - Copy (2)


Find out more about Kayleigh by watching her YouTube Video and by reading her story!

Teens Speak Up! is a program that provides an opportunity for teens with epilepsy and their parents to visit the nation's capital, receive advocacy training, meet with their legislators, and tell their personal stories. Teens Speak Up! is part of the Public Policy Institute. Teens from across the country are selected by the Epilepsy Foundation to participate in the program. After receiving training at TSU, each teen is asked to turn that training into action in their respective home districts through our Year of Service program.     

Call, write or visit your state and local representative to advocate on behalf of individuals living with epilepsy in your community. Find out more here: https://www.govtrack.us/

Contact us to become an epilepsy advocate!

Your Name (required)

Your City (required)

Your Phone (required)

Your Email (required)


Your Message

Leave a Comment