When Joshua was just 3 months old, his mother noticed he had a shaking in his hands. His parents videotaped his shaking and took it to his doctor who then immediately had Joshua sent over to the hospital. It was then that he was diagnosed with Tuberous Sclerosis Complex (TSC), a rare, multi-system genetic disease that causes benign tumors to grow in the brain and on other vital organs such as the kidneys, heart, eyes, lungs, and skin. Epilepsy is present in greater than 90% of patients with TSC. Joshua has had 3 brain surgeries.
A Long time patient of Dr. Ian Miller and Pat Dean, at Nicklaus Children’s Hospital, Joshua’s family was encouraged to take advantage of one of the services Epilepsy Florida is most proud of: a week long, all expenses paid, overnight, summer fun at the famous Camp Boggy Creek.
Since 1996, Camp Boggy Creek has made it possible for children with serious illnesses to enjoy a camp experience in a safe, medically-sound environment. The 232-acre camp serves children ages 7-16 who’ve been diagnosed with chronic or life-threatening conditions.
“Joshua doesn’t interact with anyone who has seizures” stated Nilsa Robert’s, Joshua’s mother “camp has been a huge opportunity to interact with kids that have seizures and has helped him realize he is not alone”.
Now upon his 12th birthday, this has been Joshua’s 3rdyear attending Camp Boggy Creek, and from the moment he gets got on the bus he immediately sees friends that he’s made in years past. The connection is immediately there, as if no time has passed from the last time they seen each other. One of his favorite activities, that he looks forward to every year, is horseback riding.
“As parents, we feel a peace of mind knowing that Dr. Miller and Pat Dean