NEWS & RESEARCH

NEWS & RESEARCH

Cause Unknown, but Not Alone

Home Magazine Gainesville - October 5, 2016 How One Woman Overcame the Isolation of Epilepsy with the Help of the Epilepsy Foundation of Florida Over…

EFOF on the Buzz

Epilepsy Foundation of Florida discussing all things epilepsy on The Buzz, featuring Jacksonville Community Resource Specialist David Grissett [embed]https://youtu.be/ILQSOPhV-2A[/embed]

Dog who could detect seizures

April 29, 2016  Since November 2015, a pit bull named "Chloe," remained homeless at the Ridgecrest Animal Shelter in Kern County, California. Sadly, the friendly…

Medical Marijuana and Epilepsy

Article and Information courtesy of the Epilepsy Foundation of America. Visit their website to learn more. What to do about the medical use of marijuana (cannabis)…

Happy Toddler

This is Reef, he is a 3-year-old boy with 3 brothers. At a very young age, he would have over 200 seizures a day. It…

My Epilepsy Story

written by: Steve Schale  (board member of Epilepsy Alliance Florida) When I was a kid growing up in Illinois, like most boys in my town,…

Thank God I Found EAF

Thank God I found them! My Name is Martin Latino, I started having febrile convulsions when I was a child, not 100% sure but I…

Not Alone Anymore

Bailey started having seizures when she was 6 years old and for years she and her family thought she had them under control. But then,…

My Voice Matters

My Voice Matters This is Karmen Cummings. She has been a client with Epilepsy Alliance Florida since 2007. Karmen Cummings like many had no idea…

Grateful for EAF

Joana Fernandes is a 56-year-old female, who began experiencing complex partial and grand mal seizures at the age of 25 years old. The client lived…

Turning the Corner

When Chelsea was about 18 years old when she started drinking and partying. She was at her grandparents’ house one night and started having nocturnal…

Be Patient and Have Faith

Written by: Manuel Rosario I was born in Dominican Republic and all my seizures happened there. When I was about 13 years old (1993), I had my first…

Major Impact

Meet Denis Zepeda, a client with Epilepsy Alliance Florida for over eight years. Denis was diagnosed with epilepsy in his home country Nicaragua at the…

Understanding Epilepsy

Emmit Donaldson and his family became part of the Epilepsy Alliance Florida family via research on the internet by his mother and through a neurologist…

Living With Epilepsy

Living with Epilepsy is like living knowing a thief might come in the night. You do not know what time it will strike, but you…

The Help I Needed

My name is Moriah, I am a 24 year old living with epilepsy and I've been part of Epilepsy Alliance Florida for over 1 year.…

A Mother’s Wish

My name is Leslie Taleno, I have two wonderful daughters. Ava (14) and Mia (13). Mia is a bit different from other kids her age. She…

Being Part of a Family

Patrick Rosser came to EAF referred by a friend. He faced the following problems of not knowing anything about epilepsy, misdiagnosis and not feeling part…

Courage for a Single Mom

Two months before her 5th birthday Eriona was diagnosed with absent seizures. Eriona is a beautiful, sweet and caring 12 year old girl. Anywhere she…

A LIGHT IN THE DARKNESS

Deja McDonald, like so many others with epilepsy, felt lost in a confusion about her condition and how to properly treat it to live her…

Taking Back your Power

This is Pedro and his family. “I remember the day I came in to the West Palm Beach office of Epilepsy Alliance Florida. I was…

Feeling Secure

Luis Avalos has been a client of Epilepsy Alliance Florida for over 9 years. He was referred to Epilepsy Alliance Florida by family court for…

Daily Fight to Live

by: Jillianne Swaby My name is Jillianne I am 30 years old and I have been epileptic since 2011. From the time I was born…

Life Experiences

Marcelino Brown is a 62 year old man who has been with Epilepsy Alliance Florida since 2013 when he experienced his first seizure due to…

Twins with Epilepsy

The Edmerson twins came to Epilepsy Alliance Florida through the Telemed program.  Both Joey and Jordan suffer from Absence seizures.  The seizure frequency varies and…

Success Story

This is Jane with her grand kids today. From the time she was a child, she struggled with grandmal seizures, as a result of her…

Great Relief

Jesus Sanchoyerto was diagnosed with epilepsy at the age of 12. He has been part of the Epilepsy Alliance Florida family since 2009. Jesus's parents…

Feeling the Judgment

by: Melissa Kavolius I was 17 and in High School when I had my first seizure in 2006. I had a really stressful week at…

A New Outlook on Life

Barry has been living with epilepsy since he was 13 years old. He recalls having daily seizures and that it took a while for him…

Paul’s Journey

Paul Rodriguez is a 32 year old male, who began experiencing grand mal seizures at the age of 10 years old. Client attended Miami Children’s…

First Time Mom with Epilepsy

7 years ago, Yamilet had her first seizure. “It came out of nowhere” she said. “I lost consciousness, I don’t know where I was…” Prior…

Warriors of Adversity

by: Alexandra Markovich The year of 2020 was not just the year I struggled. It was the year I struggled, my neighbor, my co-worker, and…

Navigating Through Life

Samantha's Story: When I first reached out to Epilepsy Alliance Florida I was trying to navigate life after high school and around 2017 I started…

Hope and Reassurance

Ersel Linton recently joined Epilepsy Alliance Florida back in May 2020. Ersel feels he has received so much support in such little time. He was…

On the Road Again

We are living in confusing and unsettling times. Many of us are trying our best to avoid leaving our homes to venture out into the…

Client since 1999

Seizures Since Birth Many of us face challenges and difficulties in our lives.  Claudia Medina has been living with Epilepsy since birth.  Before she came…

Persistence Pays Off

Dylan Scott came to Epilepsy Alliance Florida needing medical and prescription services.  Dylan is a 27 yr. old male who suffers from epilepsy. In 2015,…

A Shimmer of Hope

Paulina Diaz is a 50 year old female, who began experiencing seizures at the age of 12 years old. She experienced tonic – clonic, complex…

Count on EAF

During this time of uncertainty there’s one thing that is certain, and it’s that Mercedes Medina can count on Epilepsy Alliance Florida for her continued…

Moving Forward

Imagine being on the highway when you get a flat tire or your engine fails. The frustration of waiting for roadside assistance as you are…

All Around Support

It was 2015 and Ninfa was living in Naples, she was receiving ongoing neurological care for her epilepsy. However, she was worried about her move…

Una Persona Muy Especial

La perspectiva de una madre... "Soy la mamá de Juan José Rodríguez y quiero con el corazón trasmitirles a través de nuestra historia toda la…

La Historia de Giovanny

La perspectiva de una madre "Mi hijo es un rayo de sol, sonriendo en todo momento, amable con todos, con solo amor para compartir. Nunca…

Elijah’s Story

When I first came to EF, I was having a lot of issues not being able to sleep at night. Knowing my son may or…

A Great Decision

Abel Gonzalez Veranes has been a part of Epilepsy Alliance Florida since 2014. He was referred by a friend after losing his Medicaid and no…

A Better Life

Client Mateo Caicedo is a 12-year-old boy, whose family relocated from Colombia in May of 2015. Mateo started experiencing seizures at the age of 4…

Francesco | Faces of Epilepsy

By Giulia Covella Appreciate the little moments in life. That’s what my three-year-old son has taught me. Francesco was born, full-term and completely healthy, on…

Faces of Epilepsy: Annabelle

It was a typical pregnancy, every doctor appointment normal and great. She was born totally healthy; absolutely no issues at all. She met her milestones…

Emily Daycock

By: Emily Daycock I was 10 months old when my seizures started after a bout of Respiratory Syncytial Virus (RSV). Though not supported, it seemed…

Zohe Hernandez

My name is Zohe Hernandez. I was born in Puerto Rico 38-years ago. At the age of nine, my family moved to Miami looking for…

Regina Bradford

In February of 2002 while traveling on my way home from work I was at a red light and was struck by a vehicle. Little…

Jennifer Field

Epilepsy Alliance Florida (EF) has been by my side since 2011 after loosing my job due to my seizures and side effects. I was diagnosed…

Mary Lawrence

During my childhood and throughout adulthood, I have had trouble with my parents, mentors, and acquaintances understanding my epilepsy. Some called my seizures fits/tantrums or…

Joshua Pruitt

By: Kerrie Pruitt, on behalf of her son, Joshua Pruitt At the age of six, Joshua had his first seizure. He had complained of a headache,…

Elizabeth Perez

My name is Elizabeth Perez. I am 34 years old.  The day that I was supposed to be born, my mom started having contractions so…

Kayleigh Gallo

Sunday, April 20, 2014, at around 7 PM, was a game changer for me.  I thought that I was suffering from the flu or some…

MEREDITH PENCE

Meredith Pence doesn't know what life is like without seizures. When she was six months old, her first tonic clonic seizure occurred, and they have…

GILANNY AMAYA

When I first came to the Epilepsy Foundation of Florida, I definitely didn’t know what I had, at all. I also didn’t have any help…

Yesenia’s Story

When the Epilepsy Foundation of Florida told me they wanted to publish my story in their issue at the beginning I was hesitant. I asked…

Cause Unknown, but Not Alone

Home Magazine Gainesville - October 5, 2016 How One Woman Overcame the Isolation of Epilepsy with the Help of the Epilepsy Foundation of Florida Over…

Kimberly Harding

My name is Kimberly Harding and I live with Intractable Epilepsy. I was formally diagnosed in February 2001, after hitting my head while snowboarding without…

Alaina Young

By: Aimee Young Alaina Young is my teenage daughter who just happens to have epilepsy. Like many others, my husband and I began to notice…

Brandon’s Story

I was two years old when I was diagnosed with Epilepsy. To say the least, I’ve had some life changing moments, but it’s also taught…

David Ostroff’s Story

David was diagnosed at the age of 2 ½ with Petit Mal and Absence Seizures after having a Grand Mal Seizure one morning sitting next…

Tyler Millares’ Story

My name is Justin Tyler Millares; I am a senior at Mater Lakes Academy High School. I live with my parents and younger sister. We…

Jonathan Dale’s Story

Jonathan Dale is a remarkable young man. He has intractable epilepsy which means that his seizures are not controlled by medication. Despite having daily seizures,…

Joy Mayfield’s Story

"I have always lived what you might call a very typical and normal lifestyle. I come from a strong, supportive family and I value my…

Arturo’s Story

I was diagnosed with epilepsy my first semester at college when I was 18 years old. Before then I thought I was invincible. I didn’t…

Jay’s Story

"My name is Jay Hennessy, I was diagnosed with Post Traumatic Epilepsy (PTE) from a Traumatic Brain Injury (TBI) in 2010, which marked the beginning…

Molly’s Story

Molly McCann was thirteen-years-old when she was diagnosed with epilepsy. She recently shared her story, which is relatable to so many young people affected by…

Richie’s Story

Richie Terrell is an amazing example of how EFOF works with legislators to help our members and veterans. EFOF has helped Richie along his journey…

Jonathan’s Story

You never forget the first time. My wife and I stood helplessly as a debilitating seizure took over our young daughter's defenseless body. In that…

Elizabeth’s Story

There’s no way to adequately describe how terrifying and disturbing it is to witness your child having a seizure. How helpless you feel. How angry…

Carlos’ Story

With the matinee-idol good looks of a young Clooney, Carlos Gimenez sits listening to his guest in the subtly appointed conference room of the public…

Angela’s Story

Life was always a struggle. At age seven, I was outside playing with my friends when suddenly I had a grandmal seizure. After I was…

Margaret’s Story

My name is Margaret Gregory I was diagnosed with epilepsy January 2009 at the age of 30. The seizures came as a surprise to my…

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